I got the results from those ultrasounds from the other day. The doctor said while she is confident that I do in fact have Marfan Syndrome, both scans showed my aorta to be perfectly healthy. I'm going to have to go back once a year so they can keep an eye on it, but she reassured me that if and when the aortic tissue expands too much, I'd just need to take pills to regulate it as opposed to surgery. I can deal with that.
So as far as dropping dead goes, I think I'm in the clear. but I've still got joint and tissue deterioration to worry about. She suggested Tai Chi, which is supposed to help me avoid things like my thumb or even my whole wrist trying to escape. Conversely, yoga is one of the worst things I could do. I really don't need to be stretched out any more than I already am.
Next up is an eye exam, to see if I have a dislocated lens. She said if I start seeing silvery flashes in front of my eyes, go to the nearest eye treatment facility right away, because it could mean that I have a detached retina. Actually, I don't even know if detached retinas and dislocated lenses are the same thing or two separate conditions. I could easily look them up, but there is sure to be accompanying pictures and I want no part of that.
Labels: doctor, Marfan
